Wolf Parkinson White Syndrome

I was diagnosed with WPW at age 21 I am now 25 and am very worried about my condition I'm not sure weather or not I have symptoms of WPW or actual stress from work. I don't become Tachy unles I drink alot (I think it is Holiday Heart) and when I start freaking my self out it feels as though I cant catch my breath. I need some kind of reassurance. I just met with my Cardialogist last month he told me maybe next year to get an eco and a stress test performed. I recently went to the dentist to get a tooth removed and he used a local anastetic novacaine my heart rate rose to about 125bpm dont know if it was because there is epinephrine or because of WPW or just because I'm a crazy stress ball.

Please if any one has any insite on this disorder/syndrome and really what are the serious statistics of developing ventricular Fibullation

Thank you
WSG

HI my name is Stephanie and I can relate to the stories that I have read. Im 24 years old and was diagnosed with WPW when I was 16, and im not sure about getting the simple procedure done to cure this disease. I know it is a simple procedure, but I guess I have the fear of not waking up or something else go wrong. .So what my cardioligist tells me that if I dont want to have the operation done that I will have to take medication for the rest of my life. But the weird thing is that out of nowhere my heart will start beating at a very fast pace.What I have always done to get my heart back to a regular pace is breathe in deeply and release it slowly.That has worked right away until recently. Now it takes alot longer to do. So I think im going to go ahead and go for the simple operation so I can live my life without medication and being worried about this condition.

i was born with wpw and im 18 when i was a baby i had relfuxe with wpw and i stop breathing in teh back of my dads car and my dad had to put my bed at a 45 dagree angle just so my blood would flow right and now im fine hope that things that happend to me when i was a baby happens to me agian when i get older

Hello Everyone.. My name is Tavo and i have delt with this Disease for too long.. I was Diagnosed with it @ age 14. I am now 28 years old and my symtoms just keep getting worse and worse..
I've been on my own for 10 years now and have not had medical attention for this cinse i was 17. I just recently landed a good job with great benefits and...You Bet!! i'm definatly gonna get it fixed Any way i can!
I've ended up in the hospital several times because of this and they have been verry scary situations.. I'M THAKFUL TO BE ALIVE. I say if you suspect anything due to this, get it cheked out.. Ive collapsed on the floor un able to move or speak before (verry Scary). Passed out. Short of breath, dizzyness . extream pain in chest, Swelling of the heart type of feeling like its gonna Explode!!. Sometimes i have a friend push extra hard against my heart to get relief.. It hurts, but feels soooooo good afterward. I've also had times during episodes when I've felt like my lungs had Collapsed due to lack of Oxigen. AND YES. DRINKING AND PARTYNG WILL ENHANCE THIS!!

My problem is that I have no trace of a [u]Worry-Wart[/u] in my body, but enough is enough!!

I have verry bad cavitys and have not seen a dentist in 10 years because they refuse to treat me unless I have Hospitalized Dentistry. (my teeth are slowly breaking off)
I have trouble breathing day & night and wake up feeling sick every morning..I have strong beleif that all this is due to this "syndrome"
I do cardio and ear healthy on a regular basis to keep my heart in a healthy state, but I'm not sure this is enough.
I've heard your Heart Scars up every time there is stress involved to the heart (an unreversable thing) thus aging your heart faster..

My advise to you would be: If you have insuranse or can afford it, Get it fixed..Procedures have changed. When I was younger the only treatment was Open heart Surgery.. Well of course you can Emagine I said No to this.. So I was Perscribed Digoxin For life. Verry Expensive. Had to stop In 98.
Nowadays I beleive they can do a simple procedure where they go up your arteries, with wires or something, and ZAP the nerves away. Sounds Good to me!!!!
Maybe I'm a rare case, but unless you want to develope Symtoms like me, I'D CERTAINLY GET ON THE BALL.
Don't want to worry you or anything. I just would hate to see people suffer like I have just because of a little doubt!
Best Of luck!!
~Tavo.

Hey everyone I just recently found out that I have WPW in Janurary 2007. I am very active and didnt want it to every get in the way, plus I didnt want to have to worry and stress myself out about something happening. I had the heart ablation Feb. 2007 and it is only March but I am currently living with no signs of WPW and that puts my mind at rest. I strongly believe that if you have WPW that you should look into the surgery!!!! Find a doctor that is recommended for the surgery even if you have to travel a little ways. I had the surgery at The University of Nebraska Medical Center and Was treated great! I was checked into the hospital at 10am and was able to leave the next day around noon! with no problems! look into it!

Good luck to all of you!
God Bless!

My 13yr old son was diagnosised with WPW a year ago. We monitored the frequency of episodes over several months, and it seemed to be getting worse. We opted for ablation surgery, which was performed just 2 days ago. He is already back to his normal self. The surgery was done at Childrens Hospital in Wisconsin by Dr. Dhala, an excellent surgeon.

Hi all:

I just wanted to post to put some peoples mind to rest. I was born with WPW, and yes it gets progressively worse as you get older. I had "episodes" all through high school, which is tough when you play sports, and in college due to lack of sleep i started to get it more frequently. When it happens it feels like your waiting for your heart to stop, and the fact that you never know if this will be "the one" to cause you to stop breathing is extreamly scary! In 2002 i was driving my son to kindergarden and out of nowhere it took off. In the car, heart racing, couldnt stop it. Drove to my parents house 5 min away and tried the usual cold water, holding your breath etc...nothing. EMTs came, and of course being young they assume youre on drugs (never have been) and eventually took me to Sunset Hospital in L.A where a doctor took me into surgery within 5 minutes of arriving. They did a surgery called cathater ablation . I would be lying to say it was a piece of cake, but honestly not as bad as i thought it would be. I am not fan of anything medical and hate pills so for me to say that is a big deal. I know this "disease" sucks, and there's so little info about what it is, but if you have questions about the surgery you can email me...i dont want to post a huge essay. Stay well-Belyn_m@yahoo.com

Hi All,

Like the last post I'd like to reassure people about WPW. I had WPW from 18years of age until I was 30. It was misdiagnosed until I was thirty: it was blamed on my asthma medication.

I had an ablation (an operation to burn the extra conductive path in my heart). This has completely cured me and I am fitter than ever. Once the operation is done it is like you have never been ill. If you have WPW get an operation done asap, you won't regret it for a second, plus it's not a major op.

PS don't let insurance companies rip you off once you're cured. In England at least they are not allowed to do this. My quote went up by 50% until I challenged them and was told it was an "optional" increase.

Hope this helps, feel free to contact me at **edited by moderator ** e-mails not allowed ** if you've any specific questions.

Hope this helps.

Hey all,
I know you don't know me, but this helps me.

I'm 15 years old, and, from what my doctor says, I may have WPW. About a week and half ago, I had my first episode(I was sitting infront of my computer, doing nothing), and luckily, my mom brought me to the hospital because my heart rate was over 200 and I didn't feel good. I was in the hospital for 2 hours(took so long for tests) and found out I had an SVT. So, I was like, "OKay... Nothing wrong with that...right?"

I went and saw my doctor last week and told meI may have WPW. I just didn't want surgery of any kind, but, to mysurprise, I found out my doctor had it when he was only 16. This was back in the day when the only choice was Open Heart surgery, but he found out about a hospital who did this surgery, that kills the nerves, and he's been fine after he got it when he was... I think in his 20's? It reassured me, but I've been all worried up about my heart. Every night, I fear I will die in the night and never see the next day, and I don't want that to happen.

Today, about an hour ago, I could hear my parents talking about it. They say I may never have a nother "SVT" or, I may. I don't know. Only time will tell.

I was diagnosed 2 months ago with WPW and would like more information about having it removed. I am now on flecanaide and the doctor had put me on 50 mg when I first went into hospital. Two months later the symptoms came back so the doctor had put the dose up to 100mg. I only get the symptoms every to months. It happened in June, July and then in September. There is a process called Ablation which helps the doctors remove the extra electrical pathway in our hearts. I understand what we are all going through and we would all like something done about it. I mean I am only 16 years old and want to live my life. Not live like this.