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Wolf Parkinson White Syndrome

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Posted: 06/22/09 - 14:45
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I've been reading these posts about WPW Syndrome and how everyone has dealt with it. Though I was born with WPW, (as everyone who has it is), I wasn't diagnosed until I was 23 years old. I was placed on medication & finally decided 4 years later to have an EPS (Electrophysiological Study) and ablation. It worked for 2 years then my WPW resurfaced in another area of my heart. I believe my case is a little unique in that regard, because usually one ablation is all it takes. For several years after it resurfaced, I didn't even have to take medication because the episodes were so infrequent and it wasn't bothering me. As I got older and the stress level in my life increased, the symptoms increased. I have been hospitalized several times because of it and am now considering a 2nd ablation. Though it is a commonly practiced procedure now, (my 1st ablation was done in 1994 and there were only 2 places in the state of Texas that could perform it) it is still not risk free, nor is it one that should be considered lightly.

I've lived with WPW in one stage or another for the last 19 years. It is sometimes very scary, but I strongly recommend that you do your research and make the decision that is best for your lifestyle.


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Posted: 09/15/09 - 14:16
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My daughter was diagnosed with WPW at 2 1/2 weeks old. She almost died from it. They say that she outgrew it, as 2/3 of kids do by the time they are 1. The one question nobody seems to be able to give me a straight answer on, is can it come back? Does anybody know?

Thanks


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