I know there has to be a hereditary link for it. My mother, my mothers mother, and my mothers mothers mother all had it (or have it). Its a non-insta dead kind. I believe my mother called it type 8 or some such thing. She doesn't like to talk about it.
Those are the only 3 women in my family to have it however. My great grandmother lived to 93 with it. She had 8 children (7 girls and 1 boy) and of those only my grandmother had it. My grandmother (now 73 still alive) had 3 children (2 girls and 1 boy) and of those only my mother has it (now 40).
I have never been diagnosed with it. I am now 24, so I may be in the clear. My great grandma was diagnosed at 20, grandma at 22 and mother at 19.
I believe my mother is actually participating in a study to determine if there is a genetic link. She doesn't like to talk about it much however (and I respect her privacy to much to pry), so I don't have much information on it.
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