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Cluster headaches, pain on top of head

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Posted: 08/11/08 - 08:28
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g_vlado
Joined: 11 Aug 2008

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I've had a headache on top of my head for the last 4 years now. It feels like someone is pulling my hair. I went to the doctor many times and did all the scans that they could come up with, well in the end they told me that I just made it all up and that there is no way I have a headache and that it's all psychological. Maybe it is but I don't know how to get rid of it. Meditating is surely an option so I would be very interested if you (author of the post above) would share more info with us, or me. My email is g_vlado@yahoo.com

thanks


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Posted: 01/07/09 - 12:02
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Since January 2006, 3 years now i have been suffering from the most horrendous top head pains you can imagine. I am amazed that there are other people who experience this pain. I have suffered from migraine since i was 12, but these headaches are 100 times worst. They ache at a particular part at the top of my head and sometimes it is the back of head. It feels like someone has whacked a heavy object on the back of my head. The pain is so bad i am wondering whether i will be able to work for much longer. I am 28 and look forward to having children but have no idea how i will cope. Sometimes the pain is so intense and frequent, the head pains can last for 2 weeks, i wonder whether its worth living. I am trying a chiropractic at the moment it has been a month no improvement yet. I dont know what to do and i cannot imagine living the rest of my years with the pain. I wake up in the night sometimes with the pain and sometimes its there on waking up in the morning. People who dont suffer from headaches will never realise how lucky they are.


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Posted: 02/06/09 - 18:43
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I am a 46 year old female and have been having top of the head headaches off and on for over a year. I often wake up with them. They aren't severe, but they are uncomfortable and seem chronic. To the posters who asked what food had to do with headaches; after reading many articles I know that food affects everything in the body. I also believe that body systems affect each other, and I have been having other issues such as swelling and pain in my fingers, stiffness in my feet upon waking and IBS. Since my mother has fibromyalgia and osteoporosis, and I have osteopenia (both auto-immune diseases) I believe that it's somehow all related. I try to watch my diet most of the time, and I do moderate exercise or yoga 3-4 times a week, but obviously it hasn't "fixed" everything.


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Posted: 04/04/09 - 14:47
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I am a 70 year old female. I have a aching under the scalp on top of my head. I get this now and again. I also suffer from allergies, and my nose is often clogged up. Can this be the cause of it.


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Posted: 04/08/09 - 08:28
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I too experience the headaches on the top of my head. They started about two weeks ago, come and go. The last few days, the headaches seem to stay around longer. I have been taking ibuprofen, but it doesn't seem to be helping. After reading some of the blogs, I'm not sure I should go to see a Dr. I am not one that likes to go to Dr's to begin with..Will they tell me it's all in my "head"..


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Posted: 06/02/09 - 13:48
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Have you tried salts - the sort which you take if you have a tummy upset - that and arnica were the only things which relieved my head pains which I associate with my age and not migraine


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Posted: 06/20/09 - 06:42
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Hello, I am a 42 year old female, never had HA. About 2 moths ago after suffering from severe top of the head pain for 7 days I went to ER. The MRI revealed at least 2 nodules around the lateral ventricle; I was told they are probably benign and are not the cause of my HA. I suspected hypothyroid and gallblader/liver problems as a cause. Latelly the HA came back especially at night (around 2 am) and now I have nausea with them. I will see a neurologist next. They are in top of the head more on the Right and sometimes my head seams to be hot in that area. Any sugestions?


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Posted: 06/23/09 - 05:58
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Hi all,

FIRSTLY I HAVE TO ASK. DID ANYONE GET A VACCINATION BEFORE ALL THIS STARTED?

I have heard that heavy metals can cause this stuff. All my symptoms started about a 2 years ago a month after I had a tetanus shot.

Anyway, maybe this can help some people. I have done about a years research into my condition. From cancer, to virus's, to syndromes to diets etc. I been through it all to find answers.

I thought I was the only one who had this strange thing. But I guess other people get it too.

Maybe I can help, I have been to many many doctors and I have found a few things.

Firstly I had what I found that seems to be consistent with the ache in the head was falx calcification, apparently its quite common and many radiologists don't even mention it in their report because its not significant. Many people get it due to imbalanced diet and too much calcium. If you keep your head in a positions for a long enough time the ache starts to develop in some people. A falx calcification can cause isolated dull stinging type of pain in the center on the top of your head. I don't know if its this, but it could be possible.

This is what I have, I have a burning, numb, stining, prickling type of ache on the top of my head, and sometimes and the back of my head. Sometimes it feels coldish or hotish and like a liquid that is leaking. Seldom it would throb but most of the time its dullish. It's not unbearable pain, it's just weird and a bit scary. I noticed that when I drink fluids it tends to make it worse, about four hours after I drink. This might be because of a slight build build up? I'm not sure.

I notice when I drink fluids my ears respond with strange symptoms. Only sometimes, I dont know if its related.

I had two MRI's the second one was done T3 which was extra resolution and showed no tumors. I have had several blood tests which showed nothing.

I am also fatigued, tired etc. I battle to sleep sometimes. Some people said it could be chronic fatigue syndrome?? Not sure. Sometimes It makes me dizzy and feel a little unstable.

I have had this for about 1 and half years now and I am 27. It is driving me crazy.

On the whole I can live life sort of okay but it has for sure effected my lifestyle. Doctors just cant help me so I have given up on them.

For the past two years I also developed cyclic vomiting syndrome. This is where every 3 months or so I have a random episode of Nausea or vomiting at night or in the morning.

This is what I get from all this. Either I have two separate things and the ache in my head is a falx calcification. Or all the symptoms I have are the same thing. If all the symptoms are the same condition it could be chronic fatigue syndrome?


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Posted: 07/04/09 - 23:01
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Hi all, I'm a 29 year old male that has been suffering from pressure in my fore head, and the top of my teeth hurt. I been in 2 car accidents 06 and 07, I don't know if that has anything to do with it, but I will soon find out. I have 2 herniaided disc because of the ppl that don't know how to push on the breaks.... (welcome to Florida I guess) I just had sinus surgery in June of 2009. It seemed well, I can breath a lot better, but the headaches and teeth pain are so servere I feel like falling on my face. I want to go to the hospital almost every day. The last time I seen the specialist he said I was suffering from Migrains and to take excedren migrain. I can't take the pain..... If you have a answer for who i should see, or what i should do i would be so greatful. God bless you all. Crying or Very sad


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Posted: 08/04/09 - 14:41
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Have you all ever seen that show Mistery Diagnosis? If not, I'll tell you something I learned from that show. It is that some times it takes several Dr.'s before you find out what is truly wrong with you. Some Dr.'s specialize in certain areas more so than others, some have had a case in which they recall that helps them to accurately diagnose the next patient with the same condition, and some dr.'s are just better than others. So don't give up on a diagnosis. I know it's frustrating b/c I've been there. Just keep going to different Dr.'s, mainly specialist, until you find one that will listen to you, and work with you, and until you get that diagnosis, treatment and relief. Just b/c you have a headache does not mean you need therapy or that you do not handle stress well. I was told that I was a new mom and that stress was just getting to me. It's true that new moms do often get headaches, especially migraines, so be sure to get enough sleep, work out to decrease stress, and get your husband or mom or someone to babysit so you can have a break to avoid this if this is what is truly occurring. My headaches ended up being caused by a number of triggers: msg (food preservative), tmj (pain in jaw), deteriorated disk in my neck, artificial sweeteners, fragrances, certain products like Proactive (fragrance mainly). it took me several dr.'s and several years to learn what ALL my triggers were. there are rare things that could be causing it also like parasites, or it could be as simple as a tension or cluster headache. Getting proper rest, and working out to relieve stress is imperative if you are having any kind of headache. Keep a diary of what you eat and of when your headaches occur. If it doesn't seem to be food related track what you were doing right before your headache occurred. If you feel dizzy, nauseated, etc. list that in your journal as well. Basically, the more info. you can give the dr. the easier the task will be to diagnose you correctly. Don't leave any symptoms out when visiting dr. Some times it's one symptom that can tie a diagnosis together. Good luck to all of you!!


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